Episode #54 - Grieving the life you had planned

In this episode, Megan and Ashley continue to talk about grief. Specifically - grieving the life you had planned before your child was diagnosed with a rare disease. While there is so much to be thankful for, parents still have to come to terms with the reality that the life they had imagined is forever changed. 

The Mito Podcast - a podcast for families and friends of children and adults with Mitochondrial Diseases and other rare diseases. We are two moms of Mito kids sharing support and resources and building community.

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Episode #53 - Self-Care

Caring for children with rare diseases can be a 24/7 job that is often stressful and challenging for parents. Megan and Ashley share their perspectives on the importance of self-care for the parents and caregivers of special needs and medically fragile children. 

The Mito Podcast - a podcast for families and friends of children and adults with Mitochondrial Diseases and other rare diseases. We are two moms of Mito kids sharing support and resources and building community.

Listen to episodes and find us online:
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Apple Podcasts
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Episode #52 - Loss and Grief

In this episode Ashley talks to Megan about the recent loss of her sister-in-law, Jen.  Jen and Ashley's sister Jamila have two young children together. Ashley describes how her family is dealing with this tragic loss and how people handle grief in different ways. As always, thank you for your support.

The Mito Podcast - a podcast for families and friends of children and adults with Mitochondrial Diseases and other rare diseases. We are two moms of Mito kids sharing support and resources and building community.

Listen to episodes and find us online:
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Apple Podcasts
Google Podcasts
Facebook
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Episode #51 - Happy New Year! 2023!

Megan and Ashley are back after a little break! A quick update about what's been going on in their lives. Happy New Year!

The Mito Podcast - a podcast for families and friends of children and adults with Mitochondrial Diseases and other rare diseases. We are two moms of Mito kids sharing support and resources and building community.

Listen to episodes and find us online:
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Apple Podcasts
Google Podcasts
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Episode #50 - Chronically April!


 Megan and Ashley have a great talk with April ("ChronicallyApril), who was diagnosed as an adult with a mitochondrial disease. She is a true Mito warrior and is currently writing her memoir. Find out more: https://www.facebook.com/chronicallyapril and https://aarguin.wixsite.com/website.

The Mito Podcast - a podcast for families and friends of children and adults with Mitochondrial Diseases and other rare diseases. We are two moms of Mito kids sharing support and resources and building community.

Listen to episodes and find us online:
Spotify
Apple Podcasts
Google Podcasts
Facebook
Instagram

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Episode #49 - Sebastien from the Flowering Hope Foundation

Ashley and Megan talk to Sebastien of the Flowering Hope Foundation. His son, Jagger, has Leigh Syndrome, a mitochondrial disease. Sebastien shares his story, and his work in promoting information and research on the use of medical cannabis, which has been instrumental in reducing the number of daily seizures that Jagger suffers.

https://www.facebook.com/floweringhopefoundation/

The Mito Podcast - a podcast for families and friends of children and adults with Mitochondrial Diseases and other rare diseases. We are two moms of Mito kids sharing support and resources and building community.

Listen to episodes and find us online:
Spotify
Apple Podcasts
Google Podcasts
Facebook
Instagram


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Episode #48 - Rachel from Cecily's Closet!

Megan and Ashley talk to Rachel from Cecily's Closet. This is an amazing organization that collects and donates equipment and supplies to families of special needs children. They also do award bedroom makeovers to children with special needs. It is named in honor of Rachel's daughter Cecily.

Find out more at https://www.cecilyscloset.org/

The Mito Podcast - a podcast for families and friends of children and adults with Mitochondrial Diseases and other rare diseases. We are two moms of Mito kids sharing support and resources and building community.

Listen to episodes and find us online:
Spotify
Apple Podcasts
Google Podcasts
Facebook
Instagram

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Episode #54 - Grieving the life you had planned

In this episode, Megan and Ashley continue to talk about grief. Specifically - grieving the life you had planned before your child was diagn...