Megan and Ashley talk to Brandi from the Malan Syndrome Foundation. Megan's son Troy has recently been diagnosed with Malan, a very rare genetic disorder, in addition to his mitochondrial dysfunction. Currently, there are about 150 individuals diagnosed with this disorder worldwide. For more info: https://www.malansyndrome.org/
A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community.
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