Episode #40 - Brandi from the Malan Syndrome Foundation

Megan and Ashley talk to Brandi from the Malan Syndrome Foundation. Megan's son Troy has recently been diagnosed with Malan, a very rare genetic disorder, in addition to his mitochondrial dysfunction. Currently, there are about 150 individuals diagnosed with this disorder worldwide. For more info: https://www.malansyndrome.org/

A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community.

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Episode #54 - Grieving the life you had planned

In this episode, Megan and Ashley continue to talk about grief. Specifically - grieving the life you had planned before your child was diagn...